Limitless Dreams for Connor and Kellen, Thanks to Newborn Screening
By Nancy Maddox, writer Christine Brown, executive director of the five-year-old National PKU Alliance, knows all about the ups and downs of newborn screening—a life-saving…
newborn screening
Newborn Screening Gets Personal: My Niece’s Positive Screen
By Michelle Forman, senior media specialist, APHL I work on newborn screening related subjects every day – some days only for an hour, some days…
On the Verge of a Coma, Baby Carter’s Life was Saved
By Nancy Maddox, writer Jordann Coleman’s first child, Sasha, was a completely healthy baby girl. She took her home from the hospital after a one-night…
What We’re Reading: PKU Awareness Edition
Did you know that May is PKU Awareness Month? We thought this was a good opportunity to look back on some of the stories of…
Writing APHL’s Newborn Screening Book: A More Emotional Journey Than Expected
By: Katlin Chadwick, Writer, Garfinkel + Associates Being part of the team that researched and wrote APHL’s new book, The Newborn Screening Story: How…
Two Siblings Born With Isovaleric Acidemia: One Caught by Newborn Screening, One Wasn’t
By Jana Monaco, Newborn Screening Parent Advocate With spring in the air, the temperatures are climbing, the famous cherry blossoms have reached peak bloom and…
Proof of the Value of Newborn Screening at Every Milestone
By Nancy Maddox, writer “I was nervous. I was scared. I thought, ‘What’s wrong with my baby?’” said Kristen Vanags. It was November 2006, and…
Newborn Screening Saves a Future NBA Star
By Nancy Maddox As a registered nurse working in the neonatal intensive care unit, Chantel Murray knows a lot about babies. When her son Christian…
3MCC: Damian was one of the “Other”
After getting the call about her newborn son, Damian, Laura Larks couldn’t sleep—so she went online. Her pediatrician had called that evening. It wasn’t definite,…
Newborn Screening: Parents are the Best Advocates
By Thalia Wood, MPH, Specialist, NewSTEPs, APHL I came to the Association of Public Health Laboratories after 11 years as the Newborn Screening Program Manager…