Despite Congenital Hypothyroidism, Madeleine’s Life is Magna Cum Laude
Baby Madeleine was born in Massachusetts in 1991 – the second child in her family. When her parents got a call that her newborn screening…
Newborn Screening and Genetics
NFL Hall of Famer is Passionate About Newborn Screening
Guest Post by Jim Kelly, President and Co-Founder, Hunter's Hope Foundation; Retired NFL Quarterback and Hall of Famer Last month, I had the privilege of participating in…
What Exactly Does the Shutdown Mean for Public Health?
As we face day three of the federal government shutdown, we are hearing more about the deeply felt impact on our federal partners. While we…
Avery’s Story: One test has completely changed her life
By Nancy Maddox, writer “This is how naïve we were,” said Sherry Dilworth. “We had the whole family going to the hospital. We had a…
I Work for the Babies, Says Minnesota Newborn Screening Laboratorian
By Holly Winslow, Newborn Screening Analyst 2, Newborn Screening Program, Minnesota Department of Health I fell into lab work. What else is a fresh graduate…
Riley and Teagan, Sisters Living With Cystic Fibrosis
By Nancy Maddox, writer Sara Rose Barth affectionately refers to her two young daughters—Riley, age 6, and Teagan, almost 4—as mini mes. “Riley is exactly…
Despite Galactosemia, Ella Grace is a Healthy Baby Girl
By Marie Stanton, Ella’s mom I went in for my scheduled C-section on June 6, 2012. We had a beautiful little girl – 9lbs 13oz…
Call for posters!
Have you been touched by newborn screening in some way? Show us how! Draw a picture, write a poem, share song lyrics or get creative…
Newborn Screening Brings Out Laughter in Casey Romond
By Nancy Maddox, writer Casey Romond was born on a hot July day in 2008. His mom’s third child, he was delivered a week early…
Limitless Dreams for Connor and Kellen, Thanks to Newborn Screening
By Nancy Maddox, writer Christine Brown, executive director of the five-year-old National PKU Alliance, knows all about the ups and downs of newborn screening—a life-saving…